12 apps for Life(Not just management) with Chronic Illness.
“Technology makes things easier for people without
disabilities, but for people with disabilities it makes things possible” - IBM
I love and agree with this quote so much its insane.
Technology opens so many routes for people with disabilities whether or not
it’s intended. I always see posts on “Apps for people with chronic illness”
being solely management/illness based but there are also apps that can help you
compensate for lost abilities and in other aspects of life and I think those
ones are just as important because we are still people. So I decided to make my own list of awesome
apps that help me as a chronically ill person or ones that’d I think would be
beneficial.
. Lyft/Uber Rideshare apps.
Some illnesses take away our ability to drive
safely. Rideshare apps are much cheaper
than taxis and less strenuous than the bus. Although they can still be quite
pricey it adds independence to your life. It can work vise versa as well, if
you lost the ability to work but not to drive then you can use rideshare apps
to make some pocket money. You could also do something like splitting the
profit with someone who can still drive if you became disabled after driving
age and have a car.
2. POF, Tinder, Jaumo, Dating apps.
Chronic illness makes it difficult to go
out and meet new people. To quote an article from the mighty “Everybody needs
people! When you’re sick and isolated, online is your people!” Online dating is
so popular these days it’s ridiculous. We don’t have to worry as much that “the
only people who use online dating are predators” Because it’s likely your
neighbours, grocery store workers, and
so on use it - everyday people use it.
While there are still struggles of actually meeting your date and
finding a suitable partner that is understanding of illness, it’s helpful and
takes down that first hitch in finding someone. & if you’re not up to
finding a partner it’s always fun to flirt and have ‘Skype dates’. & always remember never ever say “Yes” to
plans. Always say “I might be able to/I’m not sure I’ll let you know” you won’t
come off as much of a “flake“ because you never said yes in the first place.
3. Bumble,Patook / Friendship Apps
Just like I said above, meeting people new
people can be hard! Many people with chronic pain are left by their platonic friends
and because it’s so difficult to go out and socialize we end up being isolated.
A lot of spoonies make online friends in support groups but we can’t meet them
because they are often so far away and for most of us traveling is hell. I knew
an app like this had to exist! One where you can physically meet new platonic
friends in your city and they do! Bumble (BFF) is a great app to try. It’s a
combination friendship, dating & networking site that has TONS of users,
unlike most apps they section off the types of connections you want to make. I
always found that making strictly platonic friends on dating sites that have
the option to state you’re looking for friends/hang outs is incredibly
difficult. The only minus to BumbleBFF is that your only matched with the same
gender. Patook is also a good app but there aren’t nearly as many users on as
bumble, it does allow you to meet different genders platonically though. I have
met 2 people from Patook and 1 of them is a very good friend of mine whom I
hang out with at home regularly. It was difficult going out enough times to see
if I could trust her enough to visit me at home but it was definitely worth
it!
I’m
new to BumbleBFF so I haven’t met someone physically yet but I’m sure I
will. & just like above never ever
ever say “YES” to plans with healthy people. They don’t understand the concept
of being sick long term; they don’t understand your body has more control in
your life than you do. Our illnesses are a 24/7/365 occupation and can make us
busier than jobs do so treat it as such.
Similarly to dating apps, I find it helpful to disclose upfront. On
these apps I write that I have to stay indoors more often than go out &
that I am disabled upfront. Why deal
with people who you can’t keep up with whatsoever or don’t want to associate
themselves with you?
4. Instacart / Grocery Delivery
Any type of delivery service is a
must! Grocery shopping can be difficult and being able to do it from the
comfort of your home can save you some spoons and stress! Instacart has a $10
minimum and has delivery fees, but I feel like this is definitely something
great to use to take a task off yours and your caregivers shoulders!
5. Night Owl
I’ve written about this before in my article
about modifying your electronics for light sensitivity and you can read more
about it here. But I really love this app it’s a MUST for chronic migraineurs
with light sensitivity. I find it helpful most of the time! Sometimes it does
get to the point where 100% isn’t dark enough but most times it’s sufficient so
I don’t have to be totally isolated/bored in bed.
6.
Skype / Video Chat
I LOVE Skype, I’m sure I’ve written that
before. It’s the next best thing to a physical hang out and it requires less
energy than one, it’s so versatile and with a little tweaking allows you to
share movies, music and WebPages. It’s a fun little way to catch up with people
in between actually seeing them; it’s like that brief coffee or brunch
date. & if things get too hard you
can cancel or leave the call early without feeling as guilty. Skype is a great
way to ward off isolation and it’s a great way to connect with people you
already know physically and people you met online whether that is through
friendship apps, dating apps, or support groups. I love using it as a
supplement to my social life; I generally just have people come over.
7.
Google Maps/Google Earth
Street view is a great way to compensate
for not being able to go outside as much as you’d like. They have this function
where the view turns as you turn so it can feel like you are there. You can
keep up with new stores that may have popped up or places in your city you may
have never seen. I love having “virtual
mall visits” where I explore outdoor malls and check out their collections
online. I also really enjoyed using street view to explore my neighbourhood
when I moved to an upstairs apartment that I can’t get out of independently. I
found a local park that I was eventually able to visit!
8.
Ever note
Ever note is great for brain fog
and short term memory problems. I had a point where I lost 5 months of memory
and every since then it’s been difficult to recall things that happened
recently. Ever note has been my second brain.
9.
AliExpress ,Joom & Offer Up
If you can’t work due to vestibular
migraines or any other chronic illness AliExpress is your new Amazon. It’s
basically the same thing except most of the virtual stores are in the Orient
and therefore everything is a whole lot cheaper. You can literally just collect
coins and use this site because there are thousands and thousands of items
under $1. I got my cane for $6 on here.
Another great one is Offer Up, it’s
an online garage sale and I see good deals on mobility devices there amongst
many other things, I got a back support pillow for $6 on there and my
wheelchair was just $15. I hope one day get a powerchair which I usually see
for around $200-300 I’ve even seen stairlifts on there as well. I highlyyyy recommend these apps.
10.
ICE / Emergency SMS
I think anyone especially those with severe
health problems should have an In Case of Emergency Paramedic app. Just keep things filled out and updated and
accessible to the paramedics. Emergency SMS apps are great if you get to the
point where you can’t type out a whole message. Apps like these generally allow
you to make pretyped messages & you can write something that says “This is
an automatic message I cannot respond”
11.
Migraine Buddy / Flare Up
Tracking your symptoms and pain can
be beneficial for you or your doctor. Having an accurate record of when things
get worse or better can help you find a better path to pain/illness management.
I’ve also heard apps like these are helpful during applying for SSI/SSDI.
12.
UberEats, Beyond Menu, grubhub, postmates: Food
Delivery
All delivery services are a
must!! Sometimes we don’t have the
energy to cook and if you’ve read my “transitioning to adulthood with severe
chronic illness/disabilities” post then using that emergency fund can come in
handy if your alone, unable to cook, and hungry. Other than that, I think
having a cute dinner date from a restaurant that uses postmates or other apps
with friends’ family or dates as a back-up plan for not being physically able
to go to the restaurant is always great idea.
My next post on apps will be some apps that are great for
distraction!
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