How to get ready with a chronic Illness #2: More tips on surviving outings!

Part 1: http://radspoonietipsntricks.blogspot.com/2017/02/how-to-get-ready-with-chronic-illness.html


Going out can be a real struggle! But if you still are somewhat able enough to go outside it can be very beneficial to your well being, just don't push yourself too hard! Here are some tips on going outside with a chronic illness.

1. Fashion choices

A little trick that I use when my energy is low and I don’t have enough energy to moisturize my legs is wearing long socks so that the majority of my legs doesn't show or wear leggings, pants, ect. ! 

2. Preserving energy & utilizing accommodations.

Most of the time I leave the house it's usually more of a car ride because it's difficult pretty much every time I go outside. I don't usually go inside every store or building that I visit with my family or friends.  It's always crucial to preserve energy. Utilize every chair you see, every mobility scooter, and any accommodation that seems fitting if you feel you need it, and don’t forget to ask for help!  It’s not shameful and anyone who truly cares for you is going to be willing to help you. You may feel awkward at first using disability accommodations but with time and confidence that will fade away. 

3. Appreciating the simple things.

 I try to focus more on just the feeling of being outside and enjoy the little things as I know so many people are completely unable to leave their homes and even though it’s difficult I cherish the feeling. It can be hard in the beginning being on the sidelines more often than anything - even when you’re a seasoned spoonie but it helps soo soo much to just enjoy the simple fact that you are outdoors instead of indoors. 

4. Medical Kit

Chronic illness/pain is very unpredictable. One moment to the next we have no idea what we will be capable of so it is always important to bring a medical kit full of all the things you are able to fit in a backpack or purse.  It can help you stay out for longer. & you can even make your medical kit cutesy/fashionable if that’s your thing, I’ve found getting a cute mini bag or putting sparkles on my medicine bottles and different things like that help me cope.

5. Don’t say yes to plans.

I hate that squirmy feeling in my body when I say “yes I’ll go” when I really have no idea if I can and since I have trouble leaving the house in general it feels like I’m lying. I think it’s better to just say “I’d love to go and I’ll try my hardest to make it, but I’m not sure as things pop up at random.”   Anyone who is really worth your time will try to be understanding and it helps lessen the confusion and disconnection especially if your friends are healthy, it’s not always easy to grasp the concept of not being in control of your body.

Hope you liked this post! If I can conjure/remember some more tips I’ll post them!